Until I Say Good-bye : My Year of Living with Joy Hardback
THE NEW YORK TIMES BESTSELLER What would you do with one last year?
Susan Spencer-Wendel was determined to laugh instead of cry.
In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles.
She was 44-years-old, with three young children, and she had only one year of health remaining.
She decided to live that year with joy. She left her job as a journalist and spent time with her family.
She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life.
As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus.
She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend.
She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour.
It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.
- Format: Hardback
- Pages: 384 pages, B&W integrated
- Publisher: Hodder & Stoughton General Division
- Publication Date: 14/03/2013
- Category: Neurology & clinical neurophysiology
- ISBN: 9781444762181
Showing 1 - 2 of 2 reviews.
Review by patsaintsfan
ALS is awful! My Aunt (second mom) just died of this a month and a half ago... <br/><br/>This book is a wonderful testament to a woman, Susan, who has the best possible attitude she can living with this sad disease. She is making the most of her life! This book is special, as she opens her life to us, the reader!
Review by GovMarley
Until I Say Goodbye is a memoir by a journalist dying of ALS. At times it was hard to align with her, as she lived a life of upper middle class and above, but I could relate to her feelings as a wife and mother. She passed away on June 4th of this year, making her story even more poignant. I can't imagine how hard it was to stay positive throughout her diagnosis and deterioration, but she did her best to share her journey. Worth a read.