Please note: In order to keep Hive up to date and provide users with the best features, we are no longer able to fully support Internet Explorer. The site is still available to you, however some sections of the site may appear broken. We would encourage you to move to a more modern browser like Firefox, Edge or Chrome in order to experience the site fully.

Supporting your high street Find out how »
The Story Within : Personal Essays on Genetics and Identity, Paperback / softback Book

The Story Within : Personal Essays on Genetics and Identity Paperback / softback

Edited by Amy (Associate Professor, Boston College) Boesky

Paperback / softback

Available to Order - This title is available to order, with delivery expected within 2 weeks

Description

The contributors to The Story Within share powerful experiences of living with genetic disorders.

Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available.

More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it.

People affected by genetic disease respond to such choices in varied and personal ways.

These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value.

They write hoping to expand conversations about genetics and identity-to deepen debate and generate questions.

They or their families are affected by Huntington's disease, Alzheimer's disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia.

All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal. Contributors Misha Angrist, Amy Boesky, Kelly Cupo, Michael Downing, Clare Dunsford, Mara Faulkner, Christine Kehl O'Hagan, Charlie Pierce, Kate Preskenis, Emily Rapp, Jennifer Rosner, Joanna Rudnick, Anabel Stenzel (deceased), Isabel Stenzel Byrnes, Laurie Strongin, Patrick Tracey, and Alice Wexler.

Information

Save 10%

£25.00

£22.35

Available to Order - This title is available to order, with delivery expected within 2 weeks
Add to Basket
Sign in to add to wishlist
 
Free Home Delivery

on all orders

 
Pick up orders

from local bookshops

Information